Monday, December 29, 2008

Another Sleepless Night

Today is day 11 with Cayden in the NICU.  I don't know how any mother can get a normal amount of sleep while they have a sick child.  When Riley gets fevers, I don't sleep a wink.  I constantly get up to get her water, take her temperature, and give her the recommended dose of tylenol/motrin every four hours.  It is the same type of sleepless nights when you have a child in the hospital.  I dose off for a few minutes only to wake up panicked with my heart racing 20 minutes later.  I wish I could sleep in the hospital chair next to his bed, but the nursing staff won't let me.  They tell me I need sleep.  I feel like telling them to change positions with me for a day and see if you can sleep.  

Our little man has seen countless medical specialists in the short time since he made his debut in to this world.  Besides having nurses surrounding his bedside constantly, he has seen three neonatoligists, my OB, a cardiologist for his PDA, three respiratory therapists for his lung disease, a physical therapist for his lethargy, a medical social worker, a radiologist, and an occupational therapist.  There's probably more that I'm forgetting.

I'm meeting with the occupational therapists today at 10:40 to try him nippling again.  He is so fatigued from his PIE that he has shown little to no interest in a bottle.  Justin and I have been given excercises to do with him daily to improve his sucking.  I pray he improves a little today.  

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